Fundraising

London Marathon 2026

This year we have 4 runners undertaking the challenge of the London Marathon in aid of our charity. They all have a real life connection to OMAS and have seen the effects of the disease first hand. 

You can read their stories and donate to their causes by clicking on the names below:

1. Euan Robertson

2. Joely Sivyer

3. Harry Stuttard

4. Nick Hopkin

Fundraise for us!

As a small grassroots charity, we are always looking for people to support our work and fundraise for us! 

All donations go directly to the Dancing Eye Syndrome Support Trust Charity. We fund and support two main events:

1. The annual Dancing Eye Syndrome Respite Weekend designed for families affected by the disease to connect, share experiences, and have well earned break from the challenges of daily life. 

2. The bi-annual OMAS Medical Conference hosted in partnership with OMSLife Foundation Charity who are based in the USA.

Do you have questions about fundraising or need any support? Email us: support@dancingeyes.org.uk 

Community Fundraising Celebrations

Our community are incredible! 

Do you know anyone who is planning a fundraising event? Let us know and we can champion and support them on our website and social media pages.

Here are some of our more recent community fundraising events: 

Joely's cake sale and tombola in October 2025 raised £225.50 to go towards her target for the marathon!
John Doe
John DoeCEO
Annie set herself the challenge of swimming the length of Lake Annecy in July 2025. She raised an incredible £1750 from her sponsorship and community events.
Annie Kendrick
Annie KendrickAttitude Swim Coaching
Joely hosted a summer fete at work and raised an incredible £1133 in her run up to the London Marathon!
Joely Sivyer
Joely SivyerLondon Marathon 2026 Marathon Runner
In 2024 Izzy's family hosted a summer long triathlon which included an open water swim, a cycle along the Leeds-Liverpool Canal and a hike on Pen-y-Ghent and the Yorkshire 3 peaks. Local communities also supported them with incredible events and raffles (Valley View Primary School & Little Movers Leeds West). Their events raised £5,000 for the D.E.S.S.T.
Izzy's Family
Izzy's FamilyIzzy's Tri for Dancing Eyes









Sellebrity Soccer 2026

On Sunday 1st February 2026, Sellebrity Soccer hosted a huge celebrity charity football match at Ashford United FC in aid of the Dancing Eye Syndrome Support Trust. 

Players included Calum Best (TV), Dan Osborne (TV), Jamie O’Hara (Ex-Spurs), MAFS Stars, Love Island Contestants, Eastenders Actors and many more.

Jo Brazier (our charity chair) and Laura Maynard (our secretary) spoke to the players before the match to remind them of what the cause is all about! 

The video on the left is courtesy of Reuben Collins one of the players in the team. (Instagram @Reubencollins_)