Fundraising
London Marathon 2026
This year we have 4 runners undertaking the challenge of the London Marathon in aid of our charity. They all have a real life connection to OMAS and have seen the effects of the disease first hand.
You can read their stories and donate to their causes by clicking on the names below:
2. Joely Sivyer
4. Nick Hopkin
Fundraise for us!
As a small grassroots charity, we are always looking for people to support our work and fundraise for us!
All donations go directly to the Dancing Eye Syndrome Support Trust Charity. We fund and support two main events:
1. The annual Dancing Eye Syndrome Respite Weekend designed for families affected by the disease to connect, share experiences, and have well earned break from the challenges of daily life.
2. The bi-annual OMAS Medical Conference hosted in partnership with OMSLife Foundation Charity who are based in the USA.
Do you have questions about fundraising or need any support? Email us: support@dancingeyes.org.uk
Community Fundraising Celebrations
Our community are incredible!
Do you know anyone who is planning a fundraising event? Let us know and we can champion and support them on our website and social media pages.
Here are some of our more recent community fundraising events:
