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Dancing Eye Syndrome
About DES
Affects And Treatment
Resources
Fundraising
DESST Blog
Contact

Dancing Eye Syndrome
About DES
Affects And Treatment
Resources
Fundraising
DESST Blog
Contact

Photos from the London Marathon 2026

Congratulations to all our fantastic runners from the London Marathon 2026!

Here are some of the photos that we received from the day:

Are you looking for informal advice or just someone to talk to?

Find us on Facebook.

This very rare disease and thus, the international community of those affected is small, therefore any donation has a big impact on real lives and goes a long way towards helping those with the condition and their carers supporting them. Thank you.

Donate to the dancing Eye Syndrome Support Trust

ABOUT THE TRUST

Established in 1997, The Dancing Eye Syndrome Support Trust gives parents – who may feel isolated – an opportunity to talk to others who are in the same situation as themselves and who may have already experienced similar problems. In this way members can provide mutual support and encouragement to parents whose children have been recently diagnosed.

The trust arranges meetings for members and produces a newsletter containing information and ideas which could be useful for families.

CONTACT DETAILS

Registered address:
98 Brookhill Street, Stapleford, Nottingham, NG9 7GG

Telephone: 07726 673539
Email: support@dancingeyes.org.uk

IMPORTANT CONTACT INFORMATION

The following adult neurology colleagues have kindly agreed to be consulted on adults who are having trouble with childhood onset OMS.

For the South:
Dr Camilla Buckley,
Consultant Neurologist,
John Radcliffe Hospital,
Oxford, OX3 9DU
Tel: 01865 231 895

For Scotland and the North:
Dr Anu Jacob,
Consultant Neurologist,
The Walton Centre for Neurology and Neurosurgery,
Liverpool, L97LJ
Tel: 01515 298 183

© Dancing Eye Syndrome Support Trust | Registered Charity Number: 1060181