Dancing Eye Syndrome Support Trust


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Dancing Eye Syndrome Support Trust | United Kingdom

Dancing Eye Syndrome Support Trust

The Dancing Eye Syndrome Support Group was formed in 1988 with the principal aim of providing a link for parents of children with D.E.S. both locally and nationally. The Dancing Eye Syndrome Trust provides support and information to families of children with Dancing Eye Syndrome.

The Dancing Eye Syndrome Support Group became a trust in 1997, giving parents who may feel isolated an opportunity to talk to others who are in the same situation as themselves and who may have already experienced similar problems. In this way members can provide mutual support and encouragement to parents whose children have been recently diagnosed.

The trust arranges meetings for members and produces a newsletter containing information and ideas which could be useful for families.

Learn more about DES Learn more about DES >>

The following adult neurology colleagues have kindly agreed to be consulted on adults who are having trouble with childhood onset OMS.

For the South:

Dr Camilla Buckley,
Consultant Neurologist,
Level 3,
West Wing,
John Radcliffe Hospital,
Oxford OX3 9DU
Telephone: 01865-231895

For Scotland and the North:

Dr Anu Jacob,
Consultant Neurologist,
The Walton Centre for Neurology and Neurosurgery,
Liverpool, L97LJ
United Kingdom
Tel+ 441515298183

DES Video

Video of opsoclonus >>

Latest Downloads

Dancing Eye/OMS Workshop Summary - April 2016

Family Education Guide

Dancing Eye/OMS Workshop Summary - February 2014

Cerebellar and cortical abnormalities in paediatric opsoclonus-myoclonus syndrome

Information Sheet for Teachers

About DES

About Dancing Eye Syndrome DES is so called because of the abnormal eye movements that occurs from this condition. >>

Affects & Treatment

Affects & Treatment A very small proportion of children recover spontaneously without medical intervention. >>


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